AADD-UK
We welcome feedback, comments, suggestions, and questions so please feel free to contact us by using the comment form at the bottom of this page.
Note to researchers:
We are keen to facilitate research which will benefit people with ADHD and you are allowed to recruit people for research projects by posting on the Research Board on our forum. But, the following terms must be met and must be clearly stated in your post:
1. Researchers must be at postgraduate level and beyond
2. Your post must include the following 12 items: project title, project description, the project objective, the design/methods of the project, characteristics of required participants, main outcome measures, names & status of researchers, name of funding bodies, names of any other involved organisations, starting date of project, expected completion date, and contact details.
3. You must also include details of ethical approval.
Any posts which do not meet these criteria will be deleted. You will find our forum here.
Note to Specialists/Psychologists/Support Groups/Coaches:
If you wish to be added to our lists, please use the comment form on the bottom of the relevant “Help & Support” page and provide us with the following 8 details: Name, professional qualifications, experience, referral details, whether private or NHS, location, website, & contact details.
Note to marketers:
You may place notices for meetings and events (but not for products & services) that are ADHD related on our Forum. Notices must be legal, decent, honest and truthful in line with the British Code of Advertising, Sales Promotion and Direct Marketing (The CAP Code) which is available on the website for the Advertising Standards Authority (ASA). For example: prices quoted must include non-optional taxes, duties, fees and charges that apply to all or most buyers; links to commercial enterprises must be clearly stated; exaggerated claims must not be made; qualifications must be clearly stated; where the promotion states that part of the price paid will be given to a charity or cause, the actual amount given must be stated; and if the promotion implies that donations will be given to a charity or cause, the total amount (or a reasonable estimate) to be given must be stated. Notices must also comply with all other aspects of the code. Free copy advice is available from the Copy Advice Service to help you avoid breaking the rules and potential action by the Advertising Standards Authority.
You must not post notices advertising your products or services on our forum. Any such posts will be deleted.
AADD-UK reserves the right to report any marketers that do not comply with the CAP Code to the ASA, and also reserves the right to delete any postings.
Review date: 10/06/2012; Next review due: 10/06/2013
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- Europe regulators not yet on board with adult ADHD due to concerns regarding diagnosis methods
- Close to an Act: how did the Health and Social Care Bill get passed?
- ADHD: Transition from Adolescence to Adulthood
- Update:Cambridgeshire’s denial of NHS treatment for adults newly diagnosed with ADHD
- AADD-UK’s response to Cambridgeshire’s denial of NHS treatment for adults newly diagnosed with ADHD
Regarding your contact details for an ADHD specialist in Essex..
. Dr Puran Chand Madan NHS South West Essex, Brentwood Clinic, High Wood Hospital, Geary Drive, Brentwood, Essex CM15 9DY
This is no longer valid, in fact this mental health-care unit told me that they don’t have an ADHD specialist.
I’m looking at using Dr Chad for my diagnosis (private but with a GP referral hopefully)
Posted by G | April 8, 2013, 9:58 pmI would like some help please. I’m in my late 30′s and I think I may have ADHD. I have gone to my G.P. and have been referred for CBT which I don’t think is what I need. My G.P. has said that a diagnosis at my age is not if any real importance but the problems I have are. I do not agree. I have never been diagnosed but have had problems throughout my life which fit the Symptoms of ADHD very well. I live in Devon and would like to know if there is any help around. I am studying for a degree at the moment and I am finding it and other things extremely difficult. Any help would be greatly appreciated.
Posted by Lee gammon | March 26, 2013, 2:01 pmCoursera, the free online university, are about to start a course on ADHD: https://www.coursera.org/#course/adhd
Posted by MatthewW | March 17, 2013, 12:06 pmRe: Cambridge Science Festival promotion
I am writing in the hope of promoting the 2013 Cambridge Science Festival on your website’s event page.
The Festival takes place 11 – 24 March 2013, and bookings for events are now open.
Please see below for information on our talk that may be of particular interest to you:
5.30pm – 7pm, 14 March
Focusing on ADHD
Babbage Lecture Theatre, New Museums Site,
CB2 3QH
Supported by The Wellcome Trust and the
British Association of Psychopharmacology
Poor concentration, hyperactivity and impulsivity
are common in people with ADHD. These
symptoms may be distressing and cause difficulties
in daily life, but what causes them? How can they
best be treated? This Brain Awareness Week
discussion panel includes Professor Barbara Sahakian,
Dr Ulrich Müller and Dr Sam Chamberlain.
Event: 27, Map: 4, Talk, Ages 14+, Pre book*
To book please visit our website http://www.cam.ac.uk/sciencefestival, or call 01223 766766.
With over two hundred events for all ages, the Festival aims to give everyone the opportunity to discover, question and take part in scientific activity at the University of Cambridge and partner organisations. Over the two week period, guests will be able to explore research that is leading the world at events that discuss science and its place in our lives – covering subjects from astronomy to zoology, with hands-on experiments and talks from leading researchers and celebrities.
Highlights this year include: Professor John Gurdon, winner of the 2012 Nobel Prize for Physiology or Medicine; science comedian Robin Ince; author Simon Mayo; and up-and-coming BBC Science presenter Helen Czerski. We’re also delighted to welcome Benedict Cumberbatch as our Guest Director, whose note on the festival and its importance can be found in the programme and on our website.
Our family open days are on 16, 17 and 23 March, and there are hundreds of activities running throughout the entire Festival fortnight. With so much going on, there really is something for everyone and we hope you really enjoy it: we invite you to challenge your mind, try something new and join us on a journey of discovery and excitement.
Thank you for your support,
Posted by Cambridge Science Festival | February 22, 2013, 10:26 amHi I contacted you guys last week with regards to my support group im trying to start up in Bagshot surrey, I have since drawn up a questionaire and placed it vairous different bussiness and the drs through out the village of Bagshot. I have since been thinking of socail media to attract on my mission to re-educate the world if want for a better word on ADHD does any body know of any good sites that would be particular good for this?
Thanks once again hope everyone is keeping well.
Kind Regards Luke Millard
Posted by adhdandtheworld | February 5, 2013, 10:12 pmHello there
I have been living in Australia for the past few years and was recently diagnosed with ADHD at the age of 33. I have been succussful treated with dexamphetamine. I am due to come back to the UK to live in May. Will I experience difficulties continuing my prescription? I just assumed that it would be similar treatment between both countries, but the more I read on here it appears a nightmare in UK.
Cheers
James
Posted by James | February 5, 2013, 4:59 amHi I came on hear last week with regards to starting up a support group in my local town in Surrey with people like myself suffereing from Adult ADHD well I have created a questionaire as im research building at the moment and would love for some of you guys in hear to answer some of the questions I have drawn up would that be ok?
Posted by luke | January 28, 2013, 11:11 pmThank you for your reply how do I get about getting noticed on hear then and get my blog recognised too? Which is also by wordpress also are there any conferences or seminars going on in the near future? Thanks Luke Millard
Posted by adhdandtheworld | January 23, 2013, 6:44 pmwhen you set up a support group let us know and we’ll publicise it and link to the site. In the mean time we suggest discussing matters on our Forum.
Posted by AADD-UK | January 23, 2013, 8:15 pmThank you do you think I have a good idea on my method to change perception and educate
Posted by adhdandtheworld | January 23, 2013, 6:12 pmWe don’t know a lot about your plans yet (or even here you are) but setting up a support group seems like a good idea. Set up a web site too, and we’ll link to it. You can get free and/or cheap ones at http://www.wordpress.com – the Isle of Wight group that has just started is a good example.
Posted by AADD-UK | January 23, 2013, 6:24 pmHi I’m a 28 year old man with ADHD had it since I was 7 I’m trying to start up a local support group in my community and my passion is to educate and change the perception of ADHD along with raising awareness and supporting others with this complex illness in order that someday the world may understand ADHD it may sound madness but this is my goal in life is there anybody who is willing to help or give advice on how to start up a community support group I’m also interested in doing a charity event in order to raise funds and more importantly awareness that ADHD is “real live with it we do!”
thanks
Posted by adhdandtheworld | January 23, 2013, 5:02 pmOne thing we’d suggest is to get onto the Forum – a lot of people should be able to offer advice.
One thing is to be persistent. Set up a meeting in a coffee shop / community centre or whatever, publicise it on this site, on our forum and on any other ADHD forum you can find, and KEEP GOING. This last bit is hard for ADHD people, but as your target ‘market’ is also ADHD people they will not necessarily come the first time they hear of it, but may come along months later, having meant to come each time.
Also, network with the people that run already existing meetings.
Posted by AADD-UK | January 23, 2013, 6:02 pmHi there. I’m the up-coming author of The Road to Myself: Dying to Live, a memoir about living with undiagnosed ADD/ADHD until the age of 35. Any chance I could write for you?
Thank you.
Cheers,
Jeff Emmerson
http://www.theroadtomyself.com
–
Jeff Emmerson
Posted by Jeff Emmerson (@ADHD_Memoir) | November 14, 2012, 5:45 pmI would like to add a specialist I saw at the priory hospital Bristol. Not sure if this is the right place or the right process. Dr Rajpal. He sees pts in Bristol; and London ( that what his headed paper says). His title describes his as a specialist in adult ADHD and Aspergers. It was a 2 hr interview and we were explained that he will write to GP and try for him to prescribe to me and in case that does not happen, we will have to come and see him for a private prescription.
His website
http://adultadhd.org.uk/contact.html,
and
http://www.priorygroup.com/Consultants/Dr-Pawan-Rajpal.aspx
Posted by Jon | October 21, 2012, 6:52 pmHi
I have Adult ADHD and was on Concerta xl. I’ve stopped taking it as it slowed me down to much and I stopped seeing my Dr over it.
Anyway, I would love to know why the armed forces will not accept people with ADHD unless they have been drug free for three years and show no signs of symptoms?!
I think it is totally unfair and wonder how many people are in the armed forces who have ADHD and don’t know it.
Thanks
Steve
Posted by Steve | October 14, 2012, 12:47 amDear AADD stuff,
I would like to ask you kindly for the pesmission to use the information from your web page in my final thesis in psychiatry specialization, Adult ADHD.
Thanks a lot in advance,
best regards.
D. Pazderkova
Posted by Dusana Pazderkova | September 23, 2012, 10:42 amIf it information that is original to us hten please do, but please give us credit (an da web link where possible). If we didn’t create it, then we can’t really say either way.
Posted by AADD-UK | November 2, 2012, 3:33 pmHi. I would like to be included in your professional resource area. I have been working with children and particularly adults for over 25 years in both the US and the UK where I reside. I am also an adult with ADHD having been diagnosed in 1990. Over the years, I have conducted workshops, lectured internationally and have worked with families and individuals in both a diagnostic, therapeutic and coaching capacity. You can look at my website which is http://www.thebfg.co.uk. Please let me know what information you require.
Thanks. Ron Weinstein, BA, MA, MA, AbD.
Posted by Ron Weinstein | August 29, 2012, 1:13 pmHi, I’m just looking for some information. I am a Norwegian female who has just been diagnosed with ADHD. I’m currently going through the process of getting my medicine (Ritalin). But within the next few months I am moving to England and I was wondering if I would be able to continue the process in England and if so what would I need?
Posted by Tay | August 17, 2012, 9:07 pmStart with your GP – bring details, or at least a letter, from your psychiatrist in Norway. You will find further information elsewhere on this site, and there is also a forum for support and help.
Posted by AADD-UK | September 11, 2012, 9:28 amHi,
I am a journalist writing a sensitive article on what it is like to live with ADHD as an adult. I’d love to speak with a woman who as diagnosed in her 20s or 30s.
If anyone would like to share their experience to help other women in the same position, please email me on jenni_marsh@hotmail,com
Best wishes
Jenni Marsh
Posted by jennifer marsh | June 15, 2012, 1:39 pmHi,
We suggest a) you put this on our forum (click here) as more active people read that and b) give a bit more detail.
Posted by AADD-UK | June 15, 2012, 1:52 pmI am a freelance journalist and I’m posting this because I’m looking for an adult who would be happy to talk about how ADHD has affected their life in an interview with woman’s magazine, Candis (www.candis.co.uk).
The article would explore how the condition has affected your life, when you received a diagnosis, what treatment and support you’ve been able to get and how this has helped (or otherwise). It could feature either a man or woman but you must be aged between 35 and 55, happy to have a telephone interview and have a picture of yourself in the magazine.
If this sounds interesting I’d love to hear from you. Please drop me an email – thorp.sj@googlemail.com
I look forward to hearing from you,
Sam
Please note I did try emailing the address given on the media page but it was returned to me as undeliverable which is why I’ve put a post on the forum.
Posted by Sam | June 12, 2012, 11:34 amHi,
You are probably better posting this in our forum proper:
http://aadduk.proboards.com/index.cgi
Comments on individual pages are really about the specific contents of that page (so thank you for letting us know the e-mail address is down! We’ll look into it.)
Posted by AADD-UK | June 12, 2012, 1:04 pmDear AADD, my name is Dr Dina Gojkovic and I am a researcher from the University of Southampton. I have emailed you twice with regards to posting on your website about our study looking at adverse effects of MPH but as yet have heard nothing back. I have noticed 1 or 2 posts on your websites similarly advertising research, so I assume that you are in principle ok with this. If I don’t hear back from you in the next 48 hours I will assume that you are happy with my team posting about our study and will proceed to do so. Obviously, I would prefer to do it with you being aware of this and so if you have any questions or comments than please let me know.
Many thanks,
Dina
Posted by Dina G | April 17, 2012, 9:46 amI have ADD and would love to know, regardless of permission slips from website owner
Posted by Aaron | May 30, 2012, 12:04 pmHi I am a british therapist ex pharmacist with adhd living in Paris who is looking at creating a european network of adult adhd professionals and support services.
I had a skype meeting yesterday with key adhd promotors from Denmark Sweden Turkey and Greece.
Consisting largely of adhd coaches and therapists.
Everyone was keen to explore how we might work together to support the sharing of advice support and increasing awareness throughout europe. I wondered if you know if any such European organization exists already?
I would love to speak with someone who may be able to connect me with some organizers in the uk and other european countries.
Best regards
Posted by eft | March 14, 2012, 4:08 pmOrganisations in Europe include: http://www.psyq.nl/Programma/Kenniscentrum-ADHD-bij-volwassenen/European-network
or take a look at this post:
http://aadduk.org/2011/04/05/1st-international-congress-for-the-european-network-adult-adhd/
Posted by AADD-UK | March 14, 2012, 4:58 pmHi I am a pharmacist in Yorkshire and have self diagnosed myself with ADHD recently. Have you considered contacting Pharmacy Magazine – they have indepth CPD material and I am only think they would be glad to hear from you regarding Adult ADHD. The details are as follows:
By Email: pm@1530.com
By Telephone: 020 7434 1530
By Post:
Pharmacy Magazine
Linen Hall
162-168 Regent Street
London
W1B 5TB
http://www.pm-modules.co.uk/ – has pther CPD modules
Also Chemist and Druggist magazine does various CPD artciles but you dont get as much information on them.
I was looking at the BMJ articles and website and apart from does Adult ADHD exist or not discusions there easn’t any concencrete information.
Though I have self diagnosed I know it is going to be a mission to convince my GP to refer me. I think if you can get some research or evidence forwarded on to BMJ or even a CPD article for them it will give a boost for understanding the condition. I think if Gp’s can get a better understanding of this condition then more diagnosis will be made.
HIH -
Posted by Harjap | May 17, 2012, 9:23 amThank you, going to try for it. Hope you feel ok as i know fybro myalga is pretty tough to deal with most days
regards
Alison
Posted by alison dinsdale | February 27, 2012, 7:42 pmHi can anyone out there give me any advice if adults who have just been diagnoised with adhd are entiltiled to any benifits, my son has just been diagnoised last month and recently lost his job. he has signed on but they only want to pay him £10 a week to live on as he has a staurday job.
HIs diagnoises was ADHD, autism spectrum, anxiety, dyslexia, and dispraxia or as he discribes it the whole works lucky me!!
Posted by alison dinsdale | January 7, 2012, 1:59 pmhi alison ,i really dont know for sure but although its a saga i would apply for DLA,you can work on it & i think itl be low rate as working.however once on you have it you have it for life…i suffer with fibro myalgia just been diagnosed at 53 but have been awarded it straight away as CAB helped fill in forms…you should also be able to get support through your doctor for help with forms from other groups & mental health,….hope useful ,as said not easy but persevere..as already diagnosed shouldnt be too difficult…wish you all the best, regards sioux
Posted by siouxa | February 23, 2012, 11:37 pmHello,
I just wanted to post our new PSA on adult ADHD. Hope it helps folks empathize with the experience of adults with ADHD.
We have a site dedicated also http://www.aboutadultadhd.com
Thanks!
Phil
Posted by Phil Boissiere | November 8, 2011, 1:21 amI’m in the US. Concerta has been around long time here. I’m not sure why it was only recently available to you. It has nothing to do with your age, at least not in the US. Dr. Marcy
Posted by Dr. Marcy Lee Howard | October 24, 2011, 3:19 pmI also have a question about what has happened to Addenbrookes. I used to get help from a specialist there who really seemed that he could help me, as i only got diagnosed at 21. I now dont know who to speak to, as im being told by my GP and was being told by my specialist dr at Addenbrookes, that I should be entitled to extra help and support, but keep being told by so called benefits experts that there is nothing wrong with me. I really dont know what to do anymore, i cant hold a job down, keep failing at everything that I do and everytime i think im getting somewhere with help for things like going back to college and help with benefits, i get told that I dont qualify. I am so angry with the lack of help I get from everywhere. I just need help!
Posted by Ben-jammin | October 20, 2011, 8:21 pmHi, I have a question about concerta xl.
I was diagnosed at 21 and was 1st prescribed Ritalin, then Concerta XL, but have just seen it is only now being made avaliable.I have been on it for 2 years now?
Was I allowed it or not?
Posted by Ben-jammin | October 20, 2011, 8:09 pmIt is my personal belief that a large portion of Inattentive ADD is a subset of ADHD. Most respond to neurostimulants just like the ADHD group. Dr. Marcy
Posted by Dr. Marcy Lee Howard | September 27, 2011, 2:58 pmHi
It seem to all be about Hyperactive ADHD, do you have any info/stats/treatments about the Inattentive kind of ADHD? if not, would you have any recommendations?
Many thanks
Emeric
Posted by Emeric | September 14, 2011, 11:55 amWhen you click on the Bristol Support Group in your listings, it takes you to the Brighton Supprt Group website
Posted by adhdthoughtsCaroline Williams | September 7, 2011, 10:11 amThanks for pointing that out. Fixed now.
Posted by AADD-UK | September 7, 2011, 10:38 amplease please can you help
i have asked my gp o contact the person that you have a specail in the west midlands at dudley hopital and they dont exisit any more. i live in wolverhmpton in the west midlands and my gp has all but given up on finding someone to test me for adhd. the annoyn thing is that i propberly have had it as a child and it was undiagnose. now im an adult i can find anyone to test me, arent they the same test.
please please can you help find me a way to get tested
many thankls
eloise harvey
Posted by eloise | August 8, 2011, 5:55 pmHi,
We have made an enquiry to the West Midlands Trust and as soon as they tell us we will post it here.
AADD UK
Posted by AADD-UK | August 10, 2011, 2:55 pmBy the way, your GP is supposed to find someone to test you without you having to tell them – referring patients to experts is part of a GP’s job. If there is no one in your area your GP should find someone outside of the are to refer you to.
However, as per our other message, as soon as we hear from the West Midlands, we’ll let you know.
Posted by AADD-UK | August 10, 2011, 2:58 pmhey hope you soon find someone. I took my son who is now 23 and just lost another job due to anxiety, panic attacks and inattitiveness to see a behavioural therapist who spotted the adhd. I used this websites details, the NICE guidelines and requested a referral from our GP, who asked my son to sell it to him why he needed the referral!! Im a nurse who works for the nhs and it made me ashamed of my profession. finally found a psychaitrist, who has confirm ADHD and autisitic spectrum, but im am paying for my sons care and hope fully going back to NHS care in the future. I sympathise if you cannot pay but after 23 years of very little help i had enough. KEEp going back to your GP he has a duty of care for you if no help ask for you local PALS number as they have a duty to help you get the care you need
Posted by alison dinsdale | January 7, 2012, 1:54 pmhey, do you know where there is any adult adhd support in essex???
Posted by Kizzy Quick | July 27, 2011, 6:04 pmIn the FAQs section, the links to the NICE guidelines aren’t working.
Posted by angle | June 7, 2011, 9:17 amThanks for mentioning this – hopefully it is fixed now.
Posted by AADD-UK | June 7, 2011, 1:46 pmHow fab to find your site – I was diagnosed well over 10 years ago as an adult. After years of struggling with ADHD I was finally taken seriously by a counsellor that I was referred to by my then employer. Suddenly everything in my life to date started to fall into place…… still struggle at times but so much easier to deal with the condition! It’s just so good to find people tking the condition in adults seriously – it’s not just naughty kids!!!!
Posted by Amanda | May 25, 2011, 11:16 pm3. Dr Andrew Moore Devon Partnership NHS Trust, North Devon District Hospital, Raleigh Park, Barnstaple EX31 4JB
Tel: 01271 322654
The aove contact from Devon is no longer at that address/number. When I called the new number, I was told that he no longer deals with ADHD.
Posted by Stephen Ramsay | May 11, 2011, 3:18 pmHi Stephen thanks for giving us this information. We’ll find out what’s going on and in the meantime we’ll take these contact details down.
Posted by veillantif | May 11, 2011, 4:19 pmRe – Brighton Adult ADHD support group.
Im sure Garret showed me that the venue pic had changed from the Earth and Stars to The Caxton Arms?
Karen
Posted by Karen Tipping | April 27, 2011, 3:57 pmMany apologies for that. The venue picture and directions should now be showing the Caxton Arms in both the blog and your support group page.
Posted by veillantif | April 28, 2011, 1:13 pm