“I feel like a universe, stuffed within a shoebox” – this is how Bryn Travers describes what it’s like to have Attention Deficit / Hyperactivity Disorder (ADHD). On 31st October 2018 the video ‘Shine a light – understanding ADHD’ was released: it’s a short documentary about what ADHD is, both from a personal and from a clinical perspective.
The release of this video co-occurred with the last day of the international ADHD awareness month (October). This initiative of the international ADHD patient organisations aims to raise awareness about ADHD, as well as funding for more research to better understand ADHD. Many events were organised worldwide during October to inform people about ADHD. Knowing more about ADHD and spreading awareness will help people to better understand (people with) ADHD. This will reduce stigma and (self)blame.
The video is in English, with subtitles in English, German, Dutch, Italian, Spanish, Hungarian and Swedish.
What is this video about?
Many children, adolescents and adults suffer from ADHD. ADHD is a complex disorder that affects people differently. Generally people experience problems in daily life, especially with respect to controlling attention, impulses and emotions. At the same time, people with ADHD enjoy their creativity and positive energy. Medication is effective for many people with ADHD, but not for all. A downside of the medication is that it needs to be taken every day, and it does not cure someone from the disorder. Other types of treatment should therefore also be offered and investigated. Knowing more about ADHD and spreading awareness will help people to understand what causes their behaviour. This will reduce stigma and (self)blame.
The makers of this mini-documentary have asked people with ADHD and their relatives what is like to have ADHD, what are the challenges and what are the things they like about ADHD. They have also asked clinicians and researchers working with ADHD to explain more about the origins of the disorder, what they have learnt from their experience working with patients, but also what are the main questions that research is trying to answer about ADHD.
Who is in the video?
The video features four of the most well-known researchers in the field of ADHD:
Dr. Eric Taylor is Emeritus Professor of Child and Adolescent Psychiatry at King’s College London,
Dr. Philip Asherson is professor of Molecular Psychiatry at King’s College London,
Dr. Barbara Franke is professor of Molecular Psychiatry at Radboud University Medical Center Nijmegen, in The Netherlands, and
Dr. Corina Greven is psychologist and behavioural geneticist at Radboud University Medical Center Nijmegen.
Next to these scientists and psychiatrists, we see three people with ADHD:
Bryn Travers, Evie Travers, and Aziz.
And we also see:
Andrea Bilbow, President of ‘ADHD Europe’ and mother of two children with ADHD,
Dr. Kai Syng Tan, researcher and artist at King’s College London, who also has an ADHD diagnosis.
In the video they talk about what ADHD is and what it is like to have ADHD, about the pro’s and con’s of ADHD medication and why other types of treatment should also be developed, about stigma and misconceptions and why education is so important, and about the positive aspects of ADHD.
About the collaborators of this video
This video was a created through collaboration between four EU-funded, international consortia of researchers that investigate ADHD and its origins. The idea came from two junior scientists, Laura Ghirardi and Dr. Nicoletta Adamo. They were supported in creating the video through the MiND Training program and by the other junior scientists from MiND.
More information about the researchers and consortia:
The video was recorded by 4QUARTER FILMS
BBC Horizon is making a documentary exploring ADHD. There will be two strands to the documentary and so they are looking for two groups of contributors with experiences with ADHD as follows:
Call out #1
“Does your child have ADHD?
BBC Horizon is making a documentary exploring ADHD, aiming to create a wider public understanding of the condition. Presented by Rory Bremner, a comedian with a particular interest in ADHD, the BBC is hoping to shed light on this commonly misunderstood condition.
The BBC wants to meet parents of children with ADHD who can tell them about what life’s like; and to also hear from their child about their own experience of the condition.
If you’re interested, please get in touch with Zoe on email@example.com, just for a chat in the first instance. The BBC will be very pleased to hear your story.
Call out #2
“Do you have ADHD? Do you feel it has it impacted your life?
BBC Horizon is making a documentary exploring ADHD, looking at the variety of ways that mild to severe ADHD can impact people’s lives in both a negative and or even positive way: with the aim of to increasing public understanding of this condition. It will be presented by Rory Bremner, a comedian who has first-hand experience of the condition. For a specific item of the programme, we want to hear from people with ADHD who feel their condition might have contributed to them entering the criminal justice system.
Please do get in touch if you think this is you. In the first instance, it would just be a chat on the phone – you do not need to commit to anything upfront.
The BBC appreciates the sensitive nature of the subject, and will handle all calls with the utmost confidentiality and respect.
The BBC is interested by the fact that ADHD is overrepresented in the prison population, and are interested in speaking with people who feel as though their ADHD may have contributed to their criminal behaviour. They hope that by sharing your story, the BBC can help to shed light on this commonly misunderstood disorder.
If you’re interested, please get in touch with Zoe on firstname.lastname@example.org: just for a chat in the first instance.”
Please help us with a study from the University of Exeter. The project is about children and young people with Attention Deficit Hyperactivity Disorder in transition between children’s services and adult services.
One piece of the project, however, is a mapping survey designed to find out which adult ADHD services are out there for young people with ADHD aged 18 and over to transition into from children’s services. This means that this survey can be answered by any person of any age who has knowledge of ADHD services, whether they have ADHD themselves or not and whether they are a parent/carer or not.
If you click on this link https://www.surveymonkey.co.uk/r/CATCh-uS_SU you will be guided to a page where you can tell the researchers about adult ADHD services in your area – or equally important the lack of adult services. The online questionnaire asks no more than 8 questions and should take less than 5 minutes to complete.
The survey is anonymous and your response will contribute to the creation of a map detailing adult ADHD services currently available in the UK. If you want more information about the project, the research team have a website where you can find more information: http://medicine.exeter.ac.uk/catchus/mapping/
Thank you very much for helping us with this project.
We are currently updating our website and so far we have added new information to 3 of our Library pages, namely ADHD in the News, Research Articles, and Books. And we have also added new ADHD events to our Calendar.
And at long last we are in the process of adding new names, and updating contact details, on our lists of Psychiatrists, Psychologists/Counsellors, Occupational Therapists (a brand new list so we’ve only got one name at the moment), Coaches, and Support Groups. So if you would like to have your services added to our lists, or to have your details updated, you will find how to contact us on the relevant page. There is no charge for adding your details to our website because we are managing and maintaining this website as a free resource for the ADHD community.
When we have completed our lists of Help & Support, we will be updating and adding new information to the remainder of our pages so please bear with us.
And in the meantime please feel free to join us in our support forum where you can ask questions and chat with others about all ADHD matters.
SUPPORT FOR ADHD AT WORK EVENT…don’t miss out! Find out how with the Access to work scheme you can apply for funding to help you with your ADHD at work, including support such as ADHD coaching, CBT, and Support Workers. The Fed are hosting a special meeting especially for Adults with ADHD 10th April 6pm – 8pm @ Brighton (Sevendials). If you would like to come remember to RSVP!….see the link for more details or see the email invitation if you’re on the ADHD Brighton mailing list. http://aadduk.proboards.com/thread/7782/support-adhd-event-april-brighton
UKAP (the UK ADHD Partnership) will host its first conference on Friday 4th April 2014. This one day event will take place at the Thistle Charing Cross Hotel, London, with a conference on ‘Reducing the Costs of ADHD across Education, Health and Care’ .
The aim of the meeting is to introduce, education, healthcare and allied professionals to the UKAP committee’s objective to raise the profile of ADHD on the political agenda in order that young people with ADHD gain better recognition and access to treatment across educational, occupational, youth justice and healthcare settings.
UKAP would also like to invite parents, carers other voluntary sector organisations and support groups who are working to support ADHD, to join them in their call to action which seeks to inform policy makers and authorities of the importance of early identification and intervention.
With presentations on the costs of ADHD, the impact on education, the family, the youth justice system, health service, accidental injury and driving, UKAP will consider what can be done to reduce the burden of ADHD on children, the family and more broadly in society. The programme will include presentations by prominent opinion leaders, and internationally recognised clinical and educational practitioners.
This meeting will be relevant to all education and healthcare practitioners working with children and young people, together with allied professionals involved in multi-agency working including educational, occupational and youth justice settings, as well as commissioners and policy makers.
For more information and registration details see the UKAP website here.
Brighton Adult ADHD Group has been invited to contribute directly to a new cross-government disability strategy. The Government has published a discussion document with questions and Brighton Adult ADHD Group wants to gather your views, to make sure we represent the experiences of people with ADHD in Sussex.
To share your views please come to our discussion event. We will have a speaker from the Office for Disability Issues.
Date: Wednesday 7th March
Time: 18.30 – 20.00
Location: The Brunswick Room, The Brighthelm Centre, North Road, Brighton, BN1 1YD
Light refreshments will be provided
For further information please contact Caroline Williams on 01403 733931
We want to talk about practical ideas that will make a real difference to your life. The Government has asked us to focus on three areas:
We have made a questionnaire with questions relating to each area that can be downloaded here. It would be helpful if you could fill in your responses before coming to the meeting, and bring them with you. If you are unable to attend the meeting, please email your responses as soon as possible to email@example.com
We will send a report of our event to the Government. They will look at everyone’s suggestions and work with disabled people to publish a new strategy later this year.
If you want to find out more visit www.odi.gov.uk/fulfillingpotential
AADD-UK has not yet received an official response to our letter (see previous post on this subject) regarding the actions taken by NHS Trusts and Commissioning Groups in Cambridgeshire which restrict access to NICE recommended treatments for people who are diagnosed as adults with ADHD. However, we notice that the new low priority policy for ADHD has been removed from the website for the Cambridgeshire and Peterborough Public Health Network and has been replaced by the words “Please note this policy has been temporarily withdrawn.” You can read this for yourself here.
Now we do realise that this removal could just be coincidence, and may or may not be a good sign. But Cambridgeshire County Council, who also received a copy of our letter, has made a very positive move. The Council’s “Adults Wellbeing and Health Overview and Scrutiny Committee” has listed under Agenda Item 7a (for their meeting on 8 February 2012) in “Committee priorities and work programme 2011/12” the following: “Provision of medication for adults with ADHD: The Chairman has received representations from individuals with ADHD on this issue. It is proposed that the Chairman and Vice-Chairman, with the support of the Scrutiny and Improvement Officer, follows this up with NHS Cambridgeshire.”
Well done and a big AADD-UK Thank You to Councillor Kevin Reynold, the Chairman of the Committee!
The meeting of the Adults Wellbeing and Health Overview and Scrutiny Committee is open to the public so if you live in Cambridgeshire and have been affected by the low priority policy do please go to the meeting. The meeting is on Wednesday 8 February 2012 at 2:30 PM in the Kreis Viersen Room, Shire Hall, Cambridge. More details are available on their website here.
And again, Thank You Councillor Reynold!
22nd – 23rd September 2011
Location: Central London
The UK Adult ADHD Network (UKAAN) will host the 1st International Congress for the European Network Adult ADHD. The 2-day conference on the 22nd and 23rd September 2011 will be located in Central London in a beautiful venue overlooking the River Thames which will accommodate 462 delegates in a Lecture Theatre.
The conference will bring together internationally recognised experts in the diagnosis and treatment of ADHD across the lifespan and highlight basic science and clinical research that contributes to our current understanding of ADHD as a lifespan disorder. Clinical services for ADHD during the transition years from adolescence to adulthood and for those newly diagnosed as adults are developing rapidly throughout many parts of Europe. The conference will build on this growing expertise by providing a uniquely European perspective that highlights the full range of functional, cognitive and mental health impairments, the impact that ADHD has on adolescent and adult mental health and the contribution to adult psychopathology. This meeting will address important clinical and scientific questions relating to ADHD and will be relevant to anyone interested in the mental health of people from the adolescent years through to early, middle and later adult life.
More information including the programme, speakers, and registration details are available here